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By Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad

ISBN-10: 0195390385

ISBN-13: 9780195390384

This booklet explores implicit offerings made by way of researchers, coverage makers, and funders concerning who merits from society's funding in future health learn. The authors concentration particularly on genetic study and think about even if such study has a tendency to minimize or exacerbate present healthiness disparities. utilizing case examples to demonstrate the problems, the authors hint the trail of genetics learn from discovery, via improvement and supply, to healthiness results. subject matters comprise breast melanoma screening and therapy, autism study, pharmacogenetics, prenatal trying out, child screening, and formative years suicide prevention. each one bankruptcy emphasizes the societal context of genetic study and illustrates how technology may well swap if consciousness have been paid to the wishes of marginalized populations. Written by way of specialists in genetics, well-being, and philosophy, this e-book argues that the clinical company has a accountability to answer group must guarantee that learn suggestions in achieving a lot wanted overall healthiness affects.

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Additional resources for Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit

Example text

For example, testing for breast cancer susceptibility is extremely expensive, largely due to the patent protection that Myriad Genetics, the test developer, currently enjoys. This testing has been aggressively marketed to physicians and to potential patients, but the price tag permits access only for relatively wealthy women. The aggressive marketing generates demand for a test that has limited clinical utility for most women (Mouchawar et al. 2005). As a result, women may struggle to pay for the test, when neither they nor their physician realizes that they are not appropriate candidates for testing.

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Am J Med. 114:477–484. Dougherty D, Conway PH. (2008) The “3T’s” road map to transform US health care: The “how” of high-quality care. JAMA. ;299(19):2319–321. Fraser N, Honneth A. (2003). Redistribution or Recognition: A Political-Philosophical Exchange. London: Verso. Gamble V. (2006). Trust, medical care, and racial and ethnic minorities. In: Satcher D, Pamies R, eds. Multicultural Medicine and Health Disparities. New York, NY: McGraw Hill; pp. 437–448. Goering S, Holland S, Fryer-Edwards K.

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Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit by Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad

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